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Katie Meyers Benefit May 8th

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Katie Meyers is the five year old daughter of Jason and Keri Meyers and granddaughter of Central residents, Terry and Peggy Meyers.  Katie has a rare disorder, Glucose Transporter Type 1 Deficiency Syndrome (Glut 1 ds) which has caused seizures lack of energy and physical and intellectual developmental delays.  While the very strict diet she has been on since diagnosis has helped alleviate most of her seizures and allowed her to begin to catch up physically, it is very difficult to maintain and does not provide optimal nutrients for her to truly thrive in all developmental areas.  An additive, C-7 oil, commonly used in milk in Europe, has been shown to serve as a transporter of glucose to the brain and has been approved by the U.S. Food and Drug Administration for human trials, but the trials are not well financed. Keri and Jason Meyers are trying to raise the money to fund them themselves. It is not an unrealistic hope. Dr. Juan Pascual at the University of Texas Southwestern Medical Center is prepared to do the trials. All that is needed now is $25,000 to pay the salary of a technician to handle the testing. Cost of the supplement itself will be low, estimated at around $300 a year per patient.

     A Dice Run will be held May 8th that will begin at Cajun Cycles in Baton Rouge with registration from 8 to 10 a.m. It will end at the Magnolia Sports Bar in Central where door prizes and prizes for high and low hands will be distributed. There also will be food, live music, a silent auction and raffles. Anyone who doesn't ride can roll the dice at the Sports Bar.

     An account for direct donations has also been set up in the name of Katie Cason Meyers at Capitol One. You can also contact Keri Meyers to make a 501.c donation.

For more information on Glut 1 ds, go to www.glut1ds.org

2 Comments

  1. Terri Hoover Dunham

    May 9, 2010 at 7:07 pm

    I would like to donate a signed copy of my book, The Legend of Papa Noel, for the auction but don’t see how to contact someone to do so.

  2. Terri Hoover Dunham

    May 9, 2010 at 7:09 pm

    Sorry, I just realized the event has already taken place. If another event is planned, please let me know.

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